Background
Problem statement
It is currently difficult for general practitioners [AND OTHER CLINICIANS?] to access up-to-date, accurate and regularly recorded observations. This is because if can be difficult (and not desirable) to make these observations within primary care settings (either due to patient reluctance, pandemic limitations or other factors). This means that:
Clinical decision making is hampered by not being able to see trend data for a given observation metric (i.e. there are not enough data points across a period of time to make an informed decision);
Observations captured within a clinical setting may not be as representative as those that are captured in a home setting (due to patient nervousness/anxiety, other situational factors - e.g. patient may have had to exert themselves prior to observation).
Regular measurements throughout the day - trend data
Home observations more representative compared to those taken in a clinical setting
...
Develop interface (based on both technical and functional requirements) to display the answers to WMTM questions in Helm (Person Held Record) that have been authored by professionals in other settings and subsequently shared via YHCR / SoS.
Develop interface to both capture and display answers to WMTM questions in the YHCR Care Portal that have been authored by professionals in other settings and subsequently shared via YHCR / SoS. This will be based on work completed in Helm as it shares the same architecture.
Support the development of the user interface within the Leeds Care Record (LCR) in order to present WMTM answers derived via YHCR / SoS.
User journeys
[CONSENT POLICY DEFINITIONS]- LCC AS DATA CONTROLLER FOR HELM
Theme | Questionnaire Sharing | |
Initiative | HQ001 HOB001 - Helm questionnaires shared with professionalsPatient recorded observations from Helm to System of Systems | |
User Journey Summary | Patient /homelessness peer capture of ‘What Matters to Me’ questions in Helm for sharing with professional users via YHCR Portal (and any other SoS connected consumers)captures and records personal observations in Helm. | |
Information provider roles | Patient, citizen, homelessness peer advocate | |
Information consumer roles | GP, practice nurse, care coordinator, secondary care clinician | |
Supporting Work | Alignment to PRSB standards, NHSI/E co-design groups for personalised care. | |
Alignments / Support | ICS priorities for personalised care and inclusion agenda (Bevan) | |
 | ||
Diagram | ||
FHIR profiles and resource mapping
...
Example 1
Example 2
Example 3
...
[FHIR DIAGRAM]
UI design guidance
To do:
...