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Background

Problem statement

It

  • Regular measurements throughout the day - trend data

  • Home observations more representative compared to those taken in a clinical setting

Blood pressure

Peak flow meter measurements (time, free text comments)

Weight

Context of use

Settings and roles

 

Summary Flow

To do - Visualisation of data from capture to presentation.  [image links inline]

 

  1. Patient capture of an observation using tools in the home.

  2. Patient entry of observation data into Helm.

  3. FHIR mapping in SoS

  4. UI presentation in Helm with historical data.

  5. UI presentation in YHCR Care Portal (based on Helm panel above) - with additional functionality for clinician views

  6. Clinician roles and workflows

Target Systems Development

  •  Develop interface (based on both technical and functional requirements) to display the answers to WMTM questions in Helm (Person Held Record) that have been authored by professionals in other settings and subsequently shared via YHCR / SoS.

  •  Develop interface to both capture and display answers to WMTM questions in the YHCR Care Portal that have been authored by professionals in other settings and subsequently shared via YHCR / SoS.  This will be based on work completed in Helm as it shares the same architecture.

  • Support the development of the user interface within the Leeds Care Record (LCR) in order to present WMTM answers derived via YHCR / SoS.

User journeys

Theme

Questionnaire Sharing

Initiative

HQ001 - Helm questionnaires shared with professionals

User Journey Summary

Patient/homelessness peer capture of ‘What Matters to Me’ questions in Helm for sharing with professional users via YHCR Portal (and any other SoS connected consumers).

Information provider roles

Patient, citizen, homelessness peer advocate

Information consumer roles

GP, practice nurse, care coordinator, secondary care clinician

Supporting Work

Alignment to PRSB standards, NHSI/E co-design groups for personalised care.

Alignments / Support

ICS priorities for personalised care and inclusion agenda (Bevan)

Image Added

FHIR profiles and resource mapping

Mandatory and Must Support Data Elements

The following data-elements are mandatory (i.e data MUST be present) or must be supported if the data is present in the sending system (Must Support definition). They are presented below in a simple human-readable explanation. Profile specific guidance and examples are provided as well. The Formal Profile Definition below provides the formal summary, definitions, and terminology requirements.

Each Questionnaire must have:

  1. a narrative summary of the questionnaire

  2. a status

  3. an intent

  4. a category code of “”

  5. a patient

Examples

  • Example 1

  • Example 2

  • Example 3

...

 

UI design guidance 

To do:

  • Wireframes of web and mobile views

  • UI control elements - Getting input, navigation, data display / content structuring

  • Advanced UI elements - History, provenance, summary/detail

Clinical terminology and coding

Acceptance criteria 

Supporting info, prsb, etc